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Jan 05 2016 WPF Files Comments on Federal Proposal for Human Subject Research Common Rule
Common Rule Data Fusion First Principles Notice of Proposed Rule-making Comment Public Comments Public Policy U.S. Department of Health and Human Services US Department of Education The Nuremberg Code, an extraordinary document around ethics and research on human subjects written after the research abuses that took place during World War II, is akin to a global Emancipation Proclamation for human research subjects. The Nuremberg Code’s 10 principles remain a timeless rendering of thought on what should be in place prior to any entity conducting research on human subjects, and this code forms the philosophical foundation of a regulation in the US known as the Common Rule. We have written extensive comments on the US proposal that will update the Common Rule… Mar 12 2014 New Privacy Resource The Origins of Fair Information Practices
Fair Information Principles First Principles Future of Privacy Privacy Ethics Chris Hoofnagle of Berkeley Law has just published arguably the single most important archive in privacy today: it is the transcripts of six of the HEW meetings in the early 197os that formed the origins of today’s Fair Information Practices. FIPs have now for 40 years formed the cornerstone of most of the privacy laws passed globally. Long lost to the dust of time, the original hearing transcripts have never been available online, and even access to the paper versions have not been widely available. Nov 06 2009 WPF files comments for FTC Roundtables on privacy standards consumer expectations of privacy
Blog Post Data Brokers Events and Conferences Fair Information Principles Federal Trade Commission (FTC) First Principles FTC filing Public Comments Public Policy FTC Privacy Roundtable — The World Privacy Forum filed comments last week for the FTC Privacy Roundtables, the first of which will be held December 7, 2009. The WPF comments urged the FTC to consider the Fair Credit Reporting Act as a key privacy model to apply to additional areas, to use the full version of Fair Information Practices, and discussed how a rights-based framework was the key to advancing consumers’ interests. The comments discussed list brokers at length, and explained how even the most informationally cautious consumer will land on numerous marketing lists and databases. The WPF comments noted that not all marketing lists are used to target ads to consumers; some lists and databases are used to deny consumers goods and services. The comments contain a detailed section on privacy frameworks, a section on direct marketing, and an appendix with supporting information. Nov 03 2009 WPF is signatory to the Madrid Declaration global privacy standards for a global world
Blog Post External Resources Fair Information Principles First Principles Foreign policy Global privacy International Privacy Madrid Declaration Modern privacy Privacy Ethics Madrid Declaration — A significant civil society document with more than 100 signatories worldwide has been published in conjunction with the 31st annual meeting of the International Conference of Privacy and Data Protection Commissioners. The document, known as the Madrid Declaration, affirms support for the complete canon of fair information practices as expressed by the OECD, affirms support of privacy as a fundamental human right, and warns that “the failure to safeguard privacy jeopardizes associated freedoms, including freedom of expression, freedom of assembly, freedom of access to information, non-discrimination, and ultimately the stability of constitutional democracies.” Jan 04 2008 A Brief Introduction to Fair Information Practices
Best Practices Briefing Paper Fair Information Principles First Principles Future of Privacy International Privacy Information about fair information practices. 12Next Page » WPF updates and news CALENDAR EVENTS WHO Constituency Meeting WPF co-chair
6 October 2022, Virtual OECD Roundtable WPF expert member and participant Cross-Border Cooperation in the Enforcement of Laws Protecting Privacy
4 October 2022, Paris, France and virtual OECD Committee on Digital and Economic Policy fall meeting WPF participant
27-28 September 2022, Paris, France and virtual more Recent TweetsWorld Privacy Forum@privacyforum·7 OctExecutive Order On Enhancing Safeguards For United States Signals Intelligence Activities The White House https://www.whitehouse.gov/briefing-room/presidential-actions/2022/10/07/executive-order-on-enhancing-safeguards-for-united-states-signals-intelligence-activities/Reply on Twitter 1578431679592427526Retweet on Twitter 1578431679592427526Like on Twitter 1578431679592427526TOP REPORTS National IDs Around the World — Interactive map About this Data Visualization: This interactive map displays the presence... Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974 This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process. COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.