Endometriosis Resources for Information Treatment and Support Everyday Health
Endometriosis Resources for Information, Treatment, and Support Everyday Health MenuNewslettersSearch Endometriosis Endometriosis Resources Living with endometriosis can be daunting, painful, and confusing. But there is no reason to give up hope. These resources can show you how to successfully navigate your symptoms and your care so that you can take back your life and live it on your own terms. By Beth LevineReviewed: February 27, 2019Fact-CheckediStockLiving with endometriosis can be daunting, painful, and confusing. But there is no reason to give up hope. These resources can show you how to successfully navigate your symptoms and your care so that you can take back your life and live it on your own terms. Organizations That Provide Endometriosis Information The Endometriosis Association This organization of women with endometriosis and healthcare providers focuses on education, support, and help toward finding a cure. Endometriosis Foundation of America This foundation offers advocacy and information to patients, enables surgical training, and funds endometriosis research. Endometriosis.org This site provides timely information and news about endometriosis to help patients make informed decisions about treatment options. Endometriosis Research Center This is an organization that supports advocacy, education, legislative efforts, and research for endometriosis. Endometriosis Resolved This resources provides options, support, and diet information. Statistics Facts Articles and News Updates on Endometriosis American College of Obstetricians and Gynecologists (ACOG) This professional organization is dedicated to the improvement of women’s health. Endometriosis News This is a news and information website about the disease. Endometriosis Update This blog is dedicated to publishing articles on recent developments in endometriosis care and research. Illinois Department of Public Health — Women’s Health This site offers a comprehensive fact sheet about endometriosis. MedlinePlus This is the website for information from the U.S. Library of Medicine. Find a Doctor Who Specializes in Endometriosis Treatment Endometriosis Foundation of America This site provides a list of things to consider when choosing a doctor, plus questions to ask, and information to gather for appointments. Endometriosis.org This resource focuses on how to find a specialist. Endometriosis Resolved This site provides background information and recommended specialists. Clinical Trials ClinicalTrials.gov This is a database of privately and publicly funded clinical research studies in all 50 states and in 201 countries. Treatment for Endometriosis Treatment usually falls under three categories: Pain Management American Academy of Pain Management (AAPM) This is a medical specialty society of pain medicine physicians. Endometriosis: Coping With Pain This is an article on coping with endometriosis pain. Hormone Therapy Center for Young Women’s Health This site offers an explanation of hormone therapy. Surgery Cleveland Clinic Here you'll find an overview, procedure details, risks and benefits, recovery, and outlook for endometriosis. Complementary and Alternative Therapies American Academy of Medical Acupuncture This organization provides help for finding a trained acupuncturist. Peace with Endo Author Aubree Deimler helps women with endometriosis naturally manage pain and increase energy to restore body, mind, and spirit. Books on Complementary and Alternative TherapiesHeal Endometriosis Naturally: Without Painkillers, Drugs, or Surgery, by Wendy K. Laidlaw Books on Living With EndometriosisAsk Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain, by Abby NormanThe Doctor Will See You Now: Recognizing and Treating Endometriosis, by Tamer Seckin, MDEndometriosis: A Key to Healing Through Nutrition, by Dian Shepperson Mills and Michael Vernon, PhDThe Endometriosis Health and Diet Program: Get Your Life Back, by Andrew Cook, MD, and Danielle Cook, RDThe Endometriosis Sourcebook, by Mary Lou Ballweg and the Endometriosis AssociationEndometriosis: The Complete Reference for Taking Charge of Your Health, by Mary Lou Ballweg and the Endometriosis AssociationThe Endo Patient's Survival Guide: A Patient's Guide to Endometriosis and Chronic Pelvic Pain, by Andrew Cook, MD, Libby Hopton, and Danielle Cook, RDStop Endometriosis and Pelvic Pain: What Every Woman and Her Doctor Need to Know, by Andrew Cook, MD Endometriosis Blogs and Personal Stories Bloomin’ Uterus Lisa discusses her progress with the disease and includes a section for other women to share their stories. Dr. Seckin’s Endometriosis Blog The blog of Tamer Seckin, MD, of the Secking Endometrial Center in New York City, provides news, education, and first-person blogs by patients. Dr. Seckin is the founder of the Endometriosis Foundation of America. EndoHope Michelle talks about living and working with an “invisible illness” like endometriosis. Endometriosis Foundation of America This influential organization has a blog page. My Endometriosis Team This is a social network for women living with endometriosis. SpeakEndo This site offers tips, information, and resources, and is sponsored by AbbVie Pharmaceuticals. Still Sunflowers Tracy writes about her journey with endometriosis and connects with others who suffer from it. Facebook Group Pages and Social Media ToolsEndoMetropolis is an online community dedicated to endometriosis discussion.Endometriosis Awareness provides education about the disease.Endometriosis Comprehension and Support provides facts and treatment options.Endometriosis Online Support Group is a place to find support, come together, meet new people, and raise awareness.Nancy’s Nook is dedicated to educating patients, their families, and healthcare professionals about endometriosis. (This group is run by invitation.)The E-Word is a Twitter space for sharing advice, news, tips, and stories for those living with endometriosis. Financial Assistance for Endometriosis Treatment NeedyMeds 1-800-503-6897 This national nonprofit provides free information on programs, resources, and coupons that help people who can’t afford healthcare or drugs. RxAssist This information center offers help with patient assistance programs, Medicare part D, and programs for low cost medication. Partnership for Prescription Assistance This organization provides information on patient assistance programs and help with enrollment. Additional reporting by Bernadette Young. Tip It Forward for Endometriosis Join the hundreds of women — plus doctors, nurses, physical therapists, and others — who have shared their best tips for living with endometriosis. Read them all on Tippi.Tippi NEWSLETTERS Sign up for our Women' s Health Newsletter SubscribeBy subscribing you agree to the Terms of Use and Privacy Policy. The Latest in Endometriosis FDA Approves Myfembree for Endometriosis Pain in Premenopausal Women Doctors were already prescribing the drug to manage uterine fibroid–related heavy menstrual bleeding, and now the medicine will be immediately available...By Lisa RapaportAugust 9, 2022 Endometriosis May Raise Risk of Stroke Study FindsWhile the overall risk is low, the link between endometriosis and cardiovascular disease is worth paying attention to.By Kaitlin SullivanJuly 25, 2022 New Study Finds Link Between Endometriosis and Early MenopauseWomen with endometriosis may have fewer reproductive years than those without the condition, especially if they’ve never had children or taken the pill...By Becky UphamJanuary 28, 2022 Does Low Testosterone Cause Endometriosis A new theory may change diagnosis and treatment of the disease.By Beth LevineMay 28, 2021 Everyday Health s Endometriosis Twitter Chat Here s What You MissedAdvocates and experts took to Twitter to discuss challenges, tips, awareness, and more in honor of Endometriosis Awareness Month.By Brianna MajsiakApril 13, 2021 Does Endometriosis Up Your Risk for Developing Rheumatoid Arthritis There’s a connection between endo and RA, according to a large study.By Beth LevineJanuary 19, 2021 Managing Endometriosis During the Coronavirus Crisis FAQsAn expert answers frequently asked questions from women with endo By Beth LevineApril 2, 2020 Model and Advocate Alaia Baldwin Aronow Opens Up About Her EndometriosisThrough advocacy and sharing vulnerable images of her ‘endo belly,’ Aronow wants other women to feel less alone.By Brianna MajsiakMarch 31, 2020 Together Against Endo Kari and Ryan Anderson Help Raise Endometriosis AwarenessFacing the disease as a couple helped Kari and Ryan Anderson persevere and start a family.By Michael DolanMarch 26, 2020 Experiences With EndometriosisAn open, honest, and raw conversation about what life with endo is really likeBy Kerry WeissMarch 19, 2020 MORE IN Lymphoma Resources Finding the Help You Need Best Parkinson s Bloggers and Influencers to Follow in 2022 Spotlight On Tigerlily Foundation