My MS Is Like a National Weather Forecast Everyday Health MenuNewslettersSearch Multiple Sclerosis News
My MS Is Like a National Weather Forecast
Generalities, vagaries, and nuance punctuated with major storms. Yup, that’s multiple sclerosis. By Trevis GleasonFor Life With Multiple SclerosisJuly 13, 2018Everyday Health BlogsFact-CheckedNational weather forecasters speak largely in generalities, much like neurologists discussing MS.iStockThe weather here in Ireland has been historic over the past month or so. We’re near on the longest period without measurable rain ever, have had temperatures the likes of which no one has seen in nearly half a century, and some places have recorded their hottest day in recorded history. You’d think that a weather forecast during a season like this might be pretty straightforward. But the truth is, no matter the national trends, there are variabilities caused by many factors: Proximity to the sea, elevation, even population size can cause minor changes that might not be reported in the nightly weather report. It’s a lot like living with multiple sclerosis (MS). RELATED: My MS: Predictable Only in Being Chronically Unpredictable Predictions Like Prognoses Are Generalities Based on Experience
Like a neurologist informing a patient of their diagnosis with MS, the forecasting officers at Met Eireann (The Irish Metereolgocial Service) have the latest science at their disposal, are highly trained in their field, and are also asked to make predictions that are, at best, generalities based on experience — either personal, or scientifically modeled. We ask what will happen, and they tell us what they believe may happen, generally. What we really want are specifics as to what the weather (or prognosis) is for our personal experience. It’s not fair to ask for such specificity, but we all hope for an accurate forecast right down to our street and house number.Just like those forecasters, MS docs can only give us their professional opinion as to what the next day, next month, or next decade is going to look like for someone living with MS. My MS-specializing neurologist said it best: “Trevis, you’re asking me to read chapters ahead in your life with MS when the next page isn’t even written yet.” The Specifics Are Different for Each Place and Each Person
Like the weather, MS can be a constant topic of conversation of those around us. “Well, I don’t know what you’re complaining about down there in Kerry; it’s bright and sunny here in Dublin,” is the same as “My cousin’s wife’s sister has MS, and she ‘cured’ it with vitamin B. Are you taking that?” I thought of this comparison as word came that some light sprinkles may fall in isolated areas the other day. I live in one of those areas, and I can tell you that every blade of grass, every nasturtium, and every withering leafy green growing in my raised beds would love to get even the slightest drink. It’s the same way I feel when I read research reports on promising new drugs and procedures. It’s what I think of when I wake with more energy than the day before. It’s how I hope against hope when the blazing sun of our disease keeps me behind closed drapery for yet another running period of days on end. We have grown accustomed to smartphone applications which will give us exact, radar-aided predictions to the minute as to how long a shower will last or for how much longer we can expect the sun to stay out from those passing clouds. Perhaps some of that pinpoint accuracy is what we expect from our medical teams and from our amateur predictions of our own personal climes. Sometimes Sunny or Cloudy Is a Matter of Perspective
The truth is that forecasting a life with MS is like that national broadcast of the weather. We have to make broad sweeps with our arms and say “sunny patches” here, and “showers likely” there. Most important, though, is knowing that the difference between “partly cloudy” and “partly sunny” in a life with MS doesn’t lie in the actual amount of cloud cover. It’s the way we decide to look at it. Wishing you and your family the best of health. Cheers, Trevis My book, Chef Interrupted, is available on Amazon. Follow me on the Life With MS Facebook page and on Twitter, and read more on Life With Multiple Sclerosis. Important: The views and opinions expressed in this article are those of the author and not Everyday Health.See More NEWSLETTERS Sign up for our Multiple Sclerosis Newsletter
SubscribeBy subscribing you agree to the Terms of Use and Privacy Policy. The Latest in Multiple Sclerosis
How to Craft a Life s Mission Statement
By Trevis GleasonOctober 21, 2022 Dysarthria When MS Makes It Hard to Speak
By Mona SenOctober 20, 2022 Is That Really How I Walk
By Trevis GleasonOctober 18, 2022 How Do You Know When to Throw in the Towel
By Trevis GleasonOctober 14, 2022 Living With MS What to Know About Neuropathic Pain and How to Manage It
Neuropathic pain is not your average pain. Here’s what to know about this unique type of MS pain and how to find relief.By Kerry WeissOctober 12, 2022 UTIs and MS The Importance of Early Diagnosis and Treatment
If you have multiple sclerosis, you may be prone to frequent urinary tract infections. Besides being painful, UTIs can make MS worse, so it’s important...By Kerry WeissOctober 12, 2022 Why Is Orange the Color of MS
By Trevis GleasonOctober 11, 2022 13 Celebrities Who Have Multiple Sclerosis
Look among the millions of people with multiple sclerosis and you'll find famous faces, too. Learn how some of these celebrities are dealing with MS and...By Regina Boyle WheelerOctober 11, 2022 We All Have Something to Teach Our MS Doctors
By Trevis GleasonOctober 7, 2022 EBV An MS Box I Can Finally Tick
By Trevis GleasonOctober 4, 2022 More In Life With Multiple Sclerosis How to Craft a Life s Mission Statement
Is That Really How I Walk
How Do You Know When to Throw in the Towel