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Sep 16 2022 Identity ecosystems are a central aspect of global digitalization the principle of Do No Harm must be a policy priority and commitment
Aadhaar Africa Biometrics Data Ecosystems Digitial Identity DNA Do No Harm OECD Identity is a data-rich resource that acts as a key to connect all levels of emerging digital ecosystems. All forms of ID carry some risk, but digital forms of ID, or “dematerialized ID,” cuts across all sectors and links copious data about individuals, their behaviors, financial status, associates, and potentially even political and religious views. Over time, distinct patterns emerge from the linked data and create new kinds of risks for individuals and groups. As the world becomes increasingly and intensely digitalized, we can expect challenges in the identity space to grow apace unless proactive attention is given to identifying and mitigating the current and future risks. Mar 01 2022 WPF advises National Institutes of Health re Genomic Data Sharing Policy
DNA Genetic Privacy Genome-wide Association Studies (GWAS) Genomic Big Data WPF filed comments to the National Institutes of Health (NIH) regarding its Genomic Data Sharing Policy. WPF recognizes that NIH is attempting to create a reasonable standard. Nonetheless, WPF urged NIH to better “future proof” its genomic data sharing proposal, and in particular requested NIH to look further into key areas, including the impacts of “genomic big data” and the limits of deidentification. WPF updates and news CALENDAR EVENTS WHO Constituency Meeting WPF co-chair
6 October 2022, Virtual OECD Roundtable WPF expert member and participant Cross-Border Cooperation in the Enforcement of Laws Protecting Privacy
4 October 2022, Paris, France and virtual OECD Committee on Digital and Economic Policy fall meeting WPF participant
27-28 September 2022, Paris, France and virtual more Recent TweetsWorld Privacy Forum@privacyforum·7 OctExecutive Order On Enhancing Safeguards For United States Signals Intelligence Activities The White House https://www.whitehouse.gov/briefing-room/presidential-actions/2022/10/07/executive-order-on-enhancing-safeguards-for-united-states-signals-intelligence-activities/Reply on Twitter 1578431679592427526Retweet on Twitter 1578431679592427526Like on Twitter 1578431679592427526TOP REPORTS National IDs Around the World — Interactive map About this Data Visualization: This interactive map displays the presence... Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974 This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process. COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.