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Key World Privacy Forum Resources

WPF Reports and Studies

The World Privacy Forum specializes in in-depth reports and research, including longitudinal research. WPF reports range from 6 months to one and a half years in their research. You can view our key reports, or you can view all of our reports. Click here to view key WPF Reports

WPF Resource Pages

Our core project areas have their own dedicated resource pages, or “landing pages.” These pages will help you find the most important material about our key topics quickly and easily, all in one glance. If you are new to our material, or just looking for the best of our material on the topic, these are the best place for you to start. WPF Resource Page: AnnualCreditReport.com WPF Resource Page: Agency and Public Comments WPF Resource Page: Behavioral Advertising and Privacy WPF Resource Page: Cloud Computing and Privacy WPF Resources Page: Genetic Privacy WPF Resources Page: Job Scams WPF Resource Page: Job Search Privacy WPF Resource Page: Medical Identity Theft WPF Resource Page: National Health Information Network WPF Resource Page: Personal Health Records WPF Resource Page: State Security Freeze Laws and General Information WPF Resource Page: The Workplace Privacy

Other WPF Documents

The World Privacy Forum publishes an array of other documents, such as research-focused timelines and issue briefs. For a complete listing see the Topics page. AOL Data Breach [FTC Complaint] – August 16, 2006. Do Not Track proposal: Consumer Rights and Protections [consensus document led by WPF] – October 31, 2007. Fair Information Practices [issue brief] – January 4, 2008. Responses to Medical Identity Theft: Eight Best Practices for Helping Victims [research, proposed best practices] – October 16, 2007

WPF Testimony and Key Speeches listed by date

Only key testimony and speeches are listed here. For a more complete listing, see the Testimony category on this site.
Congressional Testimony: The Modern Permanent Record and Consumer Impacts from the Offline and Online Collection of Consumer Information [testimony] -November 19, 2009 Congressional Testimony: What’s a Consumer to Do? Consumer Perceptions and Expectations of Privacy Online [testimony] -October 13, 2011 Secretary’s Advisory Committee on Genetics, Health, and Society [testimony] – February 13, 2008. FTC: Network Advertising Initiative [testimony] – November 2, 2007. AHIMA Keynote: Medical Identity Theft Responses and Issues [speech] – October 9, 2007. FDA: iPledge and Privacy Issues [testimony] – August 1, 2007. FDA: RiskMAP Privacy [testimony] – June 26, 2007. AHIC: PHRs and Privacy, Patient Authentication [testimony] – Sept. 29, 2006. NCVHS: The NHIN and Privacy EHRs, Medical ID Theft, Data Breach, Security Issues [testimony] – August 16, 2005. Privacy Issues and Implications of the new Federal ID Card HSPD-12 [testimony] – January 19, 2005.

WPF Agency Comments

For a complete listing of World Privacy Forum agency work and comments, please see the Agency Comments Page.

WPF Consumer Tips Guides and FAQs

Key World Privacy Forum consumer tips and Frequently Asked Questions. A Patient’s Guide to HIPAA Access, Amendment, and Accounting of Disclosures: FAQs for Medical ID Theft Victims World Privacy Forum’s Top Ten Opt Outs How to Place a Credit Freeze (Security Freeze) Cookie Opt Out Tips for Consumers Annualcreditreport.com tips (ordering credit reports online) Job Scam Tips for Consumers Job Seeker’s Guide to Resume Privacy: 12 Resume Posting Truths The Potential Privacy Risks in Personal Health Records (Consumer advisory) Privacy Guide for Job Searching Online What to do About Medical ID Theft Search Engine Privacy Tips Privacy Guide for Job Searching Online Resume Database Information (From 2003 study) Monster.com Data Breach Consumer Alert

External Links

Fair Information Practices

OECD Fair Information Practices OECD Privacy Statement Generator

Medical Information and Privacy Resources

A Patient’s Guide to HIPAA Bob Gellman’s Health Privacy Bibliography HHS Office of Civil Rights NCVHS Reports WPF updates and news CALENDAR EVENTS

WHO Constituency Meeting WPF co-chair

6 October 2022, Virtual

OECD Roundtable WPF expert member and participant Cross-Border Cooperation in the Enforcement of Laws Protecting Privacy

4 October 2022, Paris, France and virtual

OECD Committee on Digital and Economic Policy fall meeting WPF participant

27-28 September 2022, Paris, France and virtual more Recent TweetsWorld Privacy Forum@privacyforum·7 OctExecutive Order On Enhancing Safeguards For United States Signals Intelligence Activities The White House https://www.whitehouse.gov/briefing-room/presidential-actions/2022/10/07/executive-order-on-enhancing-safeguards-for-united-states-signals-intelligence-activities/Reply on Twitter 1578431679592427526Retweet on Twitter 1578431679592427526Like on Twitter 1578431679592427526TOP REPORTS National IDs Around the World — Interactive map About this Data Visualization: This interactive map displays the presence... Report: From the Filing Cabinet to the Cloud: Updating the Privacy Act of 1974 This comprehensive report and proposed bill text is focused on the Privacy Act of 1974, an important and early Federal privacy law that applies to the government sector and some contractors. The Privacy Act was written for the 1970s information era -- an era that was characterized by the use of mainframe computers and filing cabinets. Today's digital information era looks much different than the '70s: smart phones are smarter than the old mainframes, and documents are now routinely digitized and stored and perhaps even analyzed in the cloud, among many other changes. The report focuses on why the Privacy Act needs an update that will bring it into this century, and how that could look and work. This work was written by Robert Gellman, and informed by a two-year multi-stakeholder process. COVID-19 and HIPAA: HHS’s Troubled Approach to Waiving Privacy and Security Rules for the Pandemic The COVID-19 pandemic strained the U.S. health ecosystem in numerous ways, including putting pressure on the HIPAA privacy and security rules. The Department of Health and Human Services adjusted the privacy and security rules for the pandemic through the use of statutory and administrative HIPAA waivers. While some of the adjustments are appropriate for the emergency circumstances, there are also some meaningful and potentially unwelcome privacy and security consequences. At an appropriate time, the use of HIPAA waivers as a response to health care emergencies needs a thorough review. This report sets out the facts, identifies the issues, and proposes a roadmap for change.